Insights from the EmpowerHER Epilepsy Forum 2026

On Saturday, 7th March 2026, I had the opportunity to attend the EmpowerHER Epilepsy Forum. While the event was held in Sydney, I connected and engaged online with participants from across Australia.

The richness and depth of lived experience, combined with the passion and knowledge of keynote speakers – including Dr. Kaitlyn Parratt, Dr. Alison McLean, Dr. Zoe Theyer, and Assoc. Prof. Milena Gandy – was incredible. A diverse range of topics was explored, including:

• Neuropsychology and the female brain

• Hormonal impacts of Epilepsy

• Peers sharing lived experiences

• Cognitive impact, and

• Genetics

I was captivated and enlightened by the discussion. From a counselling perspective, the aspect I noticed and appreciated the most was the ability of the presenters and online convenors to hold and honour a safe pace for individuals with Epilepsy and other forum participants. All questions were answered with professionalism, competence, and the utmost positive regard.

I was particularly curious about the differential diagnosis regarding cognitive function and decline. I asked whether there was a difference between the patterns of cognitive decline in a person with dementia versus someone with Epilepsy who is on medication, and if this shows up differently both in neuropsychological testing and on a PET scan.

Both the Neuropsychologist and Neurologist/Epileptologist respectfully responded to the parts of the question relevant to their expertise. For those interested, the short answer is Yes to both:

1. The cognitive patterns, from a neuropsychological perspective, are different in early-stage Dementia versus the cognitive difficulties experienced as a result of Epilepsy and the medication taken.

2. These differences are also distinct on PET scans (specialised brain imaging).

If you ever have the chance to attend an EmpowerHER Epilepsy Forum –  as an individual with lived experience, a loved one, or a professional seeking insights – I highly recommend the event. Additionally, like me, you may have the opportunity to meet, engage, and maintain relationships with a fascinating range of individuals.

Thank you, Epilepsy Action Australia, for hosting such an insightful and empowering event.